A great source of information is http://www.211.org/
You can just dial 211 in most places to connect with United Way, which in turn connects with many local agencies. The website has a "dial" button so you can speak with someone.
Do you both have the same md? They can be a good resource, for both of you. But sometimes they are more or less helpful or knowledgeable in different areas. Being a caregiver is very stressful, emotionally and physically, and you need support for yourself as well as for him.
When I was a caregiver to my mom, people always asked "how's your mom doing?" But I only recall a few rare times I was asked how I was doing. Sometimes I felt like I was going to collapse, have a meltdown or a breakdown from the stress, frustration, responsibility, and loss of my life as it had been before. Most don't recognize the strain of being a caregiver, including many caregivers. They put the other's needs before their own, give their all until they are depleted, and beyond. You have reached out, and you are not a bad person to complain or vent about yourself and your feelings and frustration and pain. It's healthier to share than to keep it bottled up.
My mother had cognitive dementia, diagnosed after her md referred her for testing at a local memory care facility. She also saw a neurologist. There are day programs and respite care often available in communities, if the person shouldn't be left alone. I had someone come in for a few hours on days I was working, to keep her company, take her out to appointments or shopping or lunch, or help with laundry and light housework.
Many good suggestions on this thread. I learned about 211 from a social worker I knew who dealt with the elderly population.
Wishing you all the best as you navigate this challenging situation.
Take care of yourself.
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