My daughter is being moved to rehab today [View all]
but I did get good news: her primary caregiver (an angel walking the earth) told me they had finally received a prescription for ativan, which is what my daughter is supposed to be given at the first sign of a seizure. Because my daughter's medical treatment is controlled by a state agency, we have to follow some silly rules, in this case the rule that only a psychiatrist can prescribe drugs like ativan. After a lot of hooh-hah involving proving our daughter was no longer covered by BC/BS--which she hasn't been for over twenty years and despite the letter from BC/BS saying she was not covered--she finally got to a psychiatrist, which is a joke in itself since my daughter can neither speak nor sign. Anyway, that's a hurdle conquered.
I'm particularly irritated by my wound vac today because I take a diuretic (congestive heart failure) and today for some reason the cords and tubes won't let me get to the toilet in time.
But that's nothing compared with the good news that as of now the cycle of seizure/911/hospital/rehab/back home that my poor child has been enduring for a couple of months will end.
Thank you all for the hugs and encouragement. You may regret the encouragement to vent, though.