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Chronic Health Conditions Discussion and Support

NightWatcher

(39,360 posts)

3. I was told "congratulations, you've got SLE lupus in your kidneys, and liver."

Reply to mopinko (Reply #1)

Wed Apr 18, 2012, 01:26 PM

Apr 2012

"you'll be permanently disabled". This was almost three weeks ago. Then a week later, "the results from your muscle biopsy show you've got dermatomyositis and that alone is enough for you to get disability from social security"

Freakin "yay"? congrats you're life just got shortened and the quality of that living got severely downgraded?

Whoopie, we're all gonna die?

I'm waiting for followup with a Primary, Rheumy, and after the latest diagnosis most likely a Neurologist.

Sure it's good to have a name for the symptoms and to know that its not in your head, but when they are happy they found ou what it is and they portray that as being happy that you have a horrible chronic illness it kinda just leaves you feeling "huh?"

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I am being stalked by the wolf - and it's a relief to find this out. [View all] hedgehog Apr 2012 OP

docs don't get this. mopinko Apr 2012 #1

I"m not a doctor- but I was just reviewing the complications of CREST syndrome hedgehog Apr 2012 #2

I was told "congratulations, you've got SLE lupus in your kidneys, and liver." NightWatcher Apr 2012 #3

The average time from diagnosis to death used to be 7 years Warpy Apr 2012 #4