Newly diagnosed with Ehlers-Danlos Syndrome... [View all]

... a genetic collagen disorder that can affect nearly every system in the body. For me it's mostly joints, tendons, GI, & neurological.

Half glad I finally have a name and proof of what's been going on with me for so many years, half freaked because there's not really any treatment and it will likely continue to get more and more debilitating. And sad 'cuz it looks like I passed it on to both my kids.

Just needed to put it out there, since I'm doing that whole 'brave face' nonsense for my family.