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Chronic Health Conditions Discussion and Support

Thinkingabout

(30,058 posts) Sun Jun 22, 2014, 11:39 PM Jun 2014

Idiopathic thrombocytopenic purpura [View all]

I diagnosed three years ago with Idiopathic thrombocytopenic purpura. I have been taking a weekly injection of NPLATE but recently my platelet count went down to 16,000. I have been very tired, sleeping lots, my joints have lots of pain. My dosage has been increased and the count is going up.

Just wondering if others has had this problem

12 replies

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Idiopathic thrombocytopenic purpura [View all] Thinkingabout Jun 2014 OP

I had/have it .Back in 2001 NCarolinawoman Jun 2014 #1

Did your platelet go up and stay up after spleen was removed? Thinkingabout Jun 2014 #4

Yes, my platelets went up after splenectomy. NCarolinawoman Jun 2014 #7

I had / have it ITP for short. Back in '77 I was diagnosed after auntAgonist Jun 2014 #2

They have only been approved by FDA but they are expensive, $2500 a shot but settle for $1300. Thinkingabout Jun 2014 #3

Tired, yes. Flu-like ... no, I don't have that symptom at all. n/t auntAgonist Jun 2014 #5

I have joint pain. Thinkingabout Jun 2014 #6

I am currently experiencing a lot of joint pain especially in my lower body auntAgonist Jun 2014 #8

Have you been tested for lupus? marybourg Jul 2014 #9

Yes and test was negative. Thinkingabout Jul 2014 #10

My daughter was diagnosed with this in the mid 1990's. hamsterjill Jul 2014 #11

Thanks for your reply. For younger folks it can go into remission but I'm older and it Thinkingabout Jul 2014 #12