Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News Editorials & Other Articles General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

moonscape

(5,436 posts)
8. Have you talked to LLS about this? Perhaps they
Wed Jul 27, 2022, 05:50 PM
Jul 2022

can help with resource ideas? Have you been to Smart Patients? Don’t know if they have an MDS area, but if not you could tap into the lymphoma area and post your query there. I only k ow the multiple myeloma area but there is a wealth of knowledge ‘monst the patients there so could well be the same in the more common lymphoma area (if not MDS.). Needing caregivers for transplants is a common occurrence for blood cancer patients.

Very sorry you are in this bind and that your transplant team can’t be more helpful, okay at all helpful!

Recommendations

0 members have recommended this reply (displayed in chronological order):

Kicking in solidarity - hope you get answers! Alice Kramden Jul 2022 #1
Contact you local county office on aging. FalloutShelter Jul 2022 #2
$400/day? That seems stiff... is that for a nurse? I'm not up on nursing home costs, but let's say Karadeniz Jul 2022 #3
That is exactly what we are paying Beatlelvr Jul 2022 #6
Oh, boy, we're sunk! Our long term care policies paid out $3000/ mo when we bought them. Since Karadeniz Jul 2022 #12
Retired Home Health /Hospice nurse here... my suggestions flying_wahini Jul 2022 #4
Thanks. I copied for myself. Appreciate the tips and help for all of us. NT SWBTATTReg Jul 2022 #9
That is correct. It does not mean a nurse. Ferrets are Cool Jul 2022 #10
Also adding that you may just need coverage for say, half day if flying_wahini Jul 2022 #5
Cancer Society, Council on Aging, & your Dr. & senior center are placesI'd start with. SheltieLover Jul 2022 #7
Have you talked to LLS about this? Perhaps they moonscape Jul 2022 #8
Thank you moonscape Ferrets are Cool Jul 2022 #11
Checking in. Not sure when your moonscape Sep 2022 #13
Thank you so much for your post. Ferrets are Cool Sep 2022 #14
Very sorry about her moonscape Sep 2022 #15
... Ferrets are Cool Sep 2022 #16
I have no answers for you, murielm99 Oct 2022 #17
Thank you. Ferrets are Cool Oct 2022 #18
Oh my goodness, I wish I knew of something that would help! Dark n Stormy Knight Oct 2022 #19
Thank you Ferrets are Cool Oct 2022 #20
Latest Discussions»Support Forums»Cancer Support»Hoping someone might be a...»Reply #8