Cancer Support
In reply to the discussion: Multiple myeloma [View all]captain queeg
(11,780 posts)That is exactly my case. Id not log in for awhile and then forget my ID or password so Id just make a new account. I think this is my third but Ive had it awhile. Now Ive got that stuff stored on my phone.
Yes you remembered correctly, Im not diabetic and they found my SMM while looking for some cause to my condition a few years ago. I was in real bad shape with my back, basically bed ridden. As it turned out the main cause was a previous surgery that had become infected. They did a follow up surgery and a spinal fusion and discovered the infection at that time. I guess the good thing was they found the MM at a very early stage. I guess its been about 3 yrs now. I go in for blood tests every 3-4 months but so far its been pretty stable at that level. The doc says I have M spikes. I havent spent a lot of time thinking about it, I figure I have enough on my plate in the present so havent thought much about it. Theres something going on though and my oncologist wants to do a PET scan next month. I guess they inject you with some marker that will show abnormal cellular activity. So well see. The one ratio that they talk about, I think its kappa/lambda or something has been almost exactly the same since they first found it. I know shes concerned about my kidney function. I think its mostly because I dont drink enough water. I really need to stay on top of that. Staying hydrated is important for a lot of things.
Anyway, while I havent thought a lot about the SMM lately I do pay attention to cancer news. Seems like a lot of guys in my age group have prostate issues and a good friend of mine is stage 4 prostate cancer. I think hes about at the end of his rope, hes held in a lot longer than anyone expected and has had all sorts of treatment. Just finished up a round of chemo and it didnt help. In Washington where I live the have the Death with Dignity and he just got his prescription for that. I think hes about ready to pull the plug. I can certainly understand that. I wanted to go up and see him, its probably been six months since I have. He says he doesnt think he wants me to visit but I might go up anyway, I got a feeling he wont be around much longer. Anyway, I dont really know hew MM will affect someone beyond just being in pain. I know my oncologist always wants to know if Im having pain and Im really not. Especially compared to how I was 3 years ago. Hope your mom is doing better. I know its common to not follow doctors recommendations but I think you are right and its best to do so. Or if you dont at least tell your doctor. I know diabetes has a lot of bad complications. Its easy to slack off when you are feeling better. Take my case where I am not always cognizant of staying hydrated. Seems like a lot of people I know are having serious medical issues. Guess that comes with age, but so far Ive been pretty fortunate.