Cancer Support

wiley

(2,921 posts)

17. So how are you now?

Fri Jun 15, 2018, 02:52 AM

Jun 2018

Still feels like I have a huge gash in the back of my throat. It’s always dry. I got 200 ml syringes though that make feeding so much less a pain. There’s only one huge pill I can’t swallow - putting pills through the tube causes serious acid reflex for me so that’s an improvement. The burns on my skin and especially my neck are still pretty bad but no longer open and bleeding. So that’s god! I make my own tube food still so that’s also good. But they keep telling me it will be months before solid food, and never bread or cookies or firm protein again. Hey I’d settle for fish and risotto and thick soups at this point. I wrap a really long Ace bandage around my waist to sleep and sleeping on my stomach is no problem.

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Progress! I havent used my PEG for 10 days. [View all] alfredo Apr 2018 OP

Yay! Great news! Solly Mack Apr 2018 #1

I am willing to endure the pain just for the alfredo Apr 2018 #4

Oh, I know. It is much so better without it. Solly Mack Apr 2018 #7

Are there any diet restrictions after the procedure? alfredo Apr 2018 #8

None for me. No stitches either but monitor the site. Solly Mack Apr 2018 #9

Right now it is red and a real pain. It looks like I lost some skin. alfredo Apr 2018 #10

I cleaned mine a few times a day. Solly Mack Apr 2018 #11

I've had drainage from day one. I have to keep dressing on because I have an allergy to the bumper. alfredo Apr 2018 #12

Bummer. Are you maintaining your weight? Solly Mack Apr 2018 #13

I initially lost 3lbs, but now I can drink the 2cal and that is good. alfredo Apr 2018 #14

Congratulations WhiteTara Apr 2018 #2

Thanks. Its been a long walk. alfredo Apr 2018 #5

Fantastic! Congrats! sinkingfeeling Apr 2018 #3

Thanks, I cant wait to have a glass of buttermilk. alfredo Apr 2018 #6

Good News! wiley Apr 2018 #15

I try to keep up with protein and high caloric foods so to maintain wieght. alfredo Apr 2018 #16

So how are you now? wiley Jun 2018 #17

Age defines how long it takes to recover. alfredo Jun 2018 #18

This site never tells me when people respond wiley Jun 2018 #19

Hang in there. Recovery is tough and the damage could be permanent. alfredo Jun 2018 #20