we heard today that preliminary results from the biopsy look good, final results next week, but it is always a tense moment. My husband was originally diagnosed with myelodysplastic syndrome (RAEB 2) which was not controlled by the standard front line drugs and led to acute myeloid leukemia.
Another thing to remember is that one hospital might say no, but another one might say yes. We lived with someone at Hope Lodge in NYC for a few months who had a rare type of lymphoma. Sloan originally said yes and then declined when another complication arose, Columbia helped to get her in remission and Cornell did the transplant, which was a combo cord and haplo. It was a long process switching between hospitals and her platelets were in the teens or twenties when she returned home to Florida after being in NY for almost a year. But 14 months later her counts are all back in the normal range and she has been back to work full time.
Wishing you have the insurance issue settled and are feeling OK.
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