Cancer Support

It was discovered yesterday that my port is broken which means it needs to be removed and a new one inserted. They are doing this round in my arm but it needs to be done before the next round in early April. Challenge is it also needs to be coordinated around when my bloodwork is strongest- this week or the end of the week before my next round and the surgeon is booked up all month except an evening or a late afternoon slot which I cannot do because fasting all day is not a good idea. So I've asked my doctor to reach out to the surgeon to see what can be done.

As with my type of lymphoma, this is a rare occurance. Guess I'm just special.

Hair is falling out rapidly- getting used to hats and scarves. And to the reality of the situation. I did buy a wig which I can only wear once my hair is all gone so the next step (prob next week) is to have my head shaved (the wig guy who only works with chemo patients will do this).
Oh yes and the night before the start of the second round, my oncologist called to say that the pathologist is still bothered by the fact that one of the slides is showing "normal". So she resubmitted the entire report to the head of pathology at the national cancer institute in MD (same person as before) who agreed that there is a slight chance (10% approx.) that its not lymphoma but agreed with my oncologist that we should proceed with treatment. So this followed by the port news made for a bizarre beginning of round 2...

I am doing my best to journal this on a blog site, and if you are interested in reading it, send me a PM and I will send you the link.

Time for bed. Thanks so much for checking in!