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KaryninMiami

(3,073 posts)
31. Symptoms subsided thank goodness
Mon Mar 3, 2014, 10:22 PM
Mar 2014

The acne and mouth sores have calmed down- what a relief. I can swallow and go out in public without feeling like a leper. Still having periods of tiredness which is to be expected but am relishing this last week, knowing that this is as good as I'll be feeling for many months. One week till round two of chemo. Soon afterwards, as I understand it, is when my hair falls out. Even as I type these words it still feels like I'm writing about someone else. Not sure I am ready yet to embrace my baldness proudly- maybe one day but the whole thing still causes my eyes to well up with tears (I have beautiful, thick, brown hair). Not sure if I mentioned this but the guy who sold me my wig, who is a character (like from a movie) with a big heart, told me that as soon as my hair starts falling out, I am to call him and schedule an appointment so that he can shave my head since that's part of what he does. He only works with cancer patients and shaving their heads is - or appears to be required.

Seeing my oncologist tomorrow in great hope that my blood work will be better then last week when I was close to needing a transfusion. I'm actually feeling pretty good - almost normal (except for the massive elephant sitting on my chest). Hopefully this means that I'm getting stronger and those white blood cells and red ones are snapping into action and doing their thing.

Discovered this week that red wine no longer tastes good- that was a sad surprise. Not that I planned on drinking a lot but having a nice glass of red wine with dinner seemed harmless enough. Sadly, after one sip I realized it was not to be. Hopefully one day my wine taste buds will return. Haven't tried vodka yet however....

Neither of my lips is feeling all that stiff but I will work on it. Promise.

Thanks for your support.

Recommendations

0 members have recommended this reply (displayed in chronological order):

Hang in there. Locate a support group and attend a couple of meetings. I didn't sinkingfeeling Feb 2014 #1
Do you have a nurse navigator? Ruby the Liberal Feb 2014 #2
Thank you KaryninMiami Feb 2014 #5
I also had a person called a patient advocate/coordinator who mapped out Nay Feb 2014 #7
Mine was through the cancer center at the hospital Ruby the Liberal Feb 2014 #8
Hi Karynin, pangaia Feb 2014 #3
Thanks for your advice! KaryninMiami Feb 2014 #4
You are very welcome. pangaia Feb 2014 #6
I have to second pangaia Ruby the Liberal Feb 2014 #9
I will only echo that the LLS group has been a wonderful source of support ... slipslidingaway Feb 2014 #11
Thanks so much-greatly appreciate your support! KaryninMiami Feb 2014 #13
We all need to support one another ... slipslidingaway Feb 2014 #15
I don't have any tips, just suport. 2theleft Feb 2014 #10
Thanks so very much for your lovely words and support KaryninMiami Feb 2014 #12
Quick update from Lymphoma -Limboland KaryninMiami Feb 2014 #14
Better to make sure of the diagnosis ... slipslidingaway Feb 2014 #16
A vanishing fluke ! KaryninMiami Feb 2014 #19
Reading your update, you have some tough times ahead ... slipslidingaway Feb 2014 #24
I'll take this as a good sign Ruby the Liberal Feb 2014 #17
I sure hope so KaryninMiami Feb 2014 #18
Verdict is in- original diagnosis was correct. Chemo Starts Monday. KaryninMiami Feb 2014 #20
Hi there karynin.. pangaia Feb 2014 #21
Thanks for making me smile KaryninMiami Feb 2014 #22
Well I just realized I should call you Karyn.. DUH!!!! pangaia Feb 2014 #23
First round of chemo done KaryninMiami Feb 2014 #25
Great to hear the first session went well. pangaia Feb 2014 #26
New adventure every day KaryninMiami Feb 2014 #27
Have you considered a hair "halo" that can be worn under hats? deurbano Mar 2014 #28
Thanks very much- will look into it. KaryninMiami Mar 2014 #30
Hi Karyn, pangaia Mar 2014 #29
Symptoms subsided thank goodness KaryninMiami Mar 2014 #31
Hi Karyn, pangaia Mar 2014 #32
1 more to go in this round - however KaryninMiami Mar 2014 #33
Hair and blood cells pangaia Mar 2014 #34
Halfway thru chemo - yay! KaryninMiami Apr 2014 #35
Keeping you in thoughts! Ruby the Liberal Apr 2014 #36
Keeping you in my thoughts and prayers maddezmom Apr 2014 #37
Just checking in... 2theleft May 2014 #38
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