Cancer Support
In reply to the discussion: Diagnosis-rare form of non Hodgkin's lymphoma [View all]KaryninMiami
(3,073 posts)The acne and mouth sores have calmed down- what a relief. I can swallow and go out in public without feeling like a leper. Still having periods of tiredness which is to be expected but am relishing this last week, knowing that this is as good as I'll be feeling for many months. One week till round two of chemo. Soon afterwards, as I understand it, is when my hair falls out. Even as I type these words it still feels like I'm writing about someone else. Not sure I am ready yet to embrace my baldness proudly- maybe one day but the whole thing still causes my eyes to well up with tears (I have beautiful, thick, brown hair). Not sure if I mentioned this but the guy who sold me my wig, who is a character (like from a movie) with a big heart, told me that as soon as my hair starts falling out, I am to call him and schedule an appointment so that he can shave my head since that's part of what he does. He only works with cancer patients and shaving their heads is - or appears to be required.
Seeing my oncologist tomorrow in great hope that my blood work will be better then last week when I was close to needing a transfusion. I'm actually feeling pretty good - almost normal (except for the massive elephant sitting on my chest). Hopefully this means that I'm getting stronger and those white blood cells and red ones are snapping into action and doing their thing.
Discovered this week that red wine no longer tastes good- that was a sad surprise. Not that I planned on drinking a lot but having a nice glass of red wine with dinner seemed harmless enough. Sadly, after one sip I realized it was not to be. Hopefully one day my wine taste buds will return. Haven't tried vodka yet however....
Neither of my lips is feeling all that stiff but I will work on it. Promise.
Thanks for your support.