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pangaia

(24,324 posts)
3. Hi Karynin,
Fri Feb 7, 2014, 10:22 PM
Feb 2014

I don't know exactly what type of lymphoma you have. There are many, but non-Hodgkins lymphoma, thanks to its being a very aggressive form of blood cancer, means that with good treatment it can promise very good outcomes.
In July 2012 I was diagnosed with Stage 2 diffuse large b-cell lymphoma-- a type of non-Hodgkins lymphoma. . Including a tumor on/near my spinal cord.

I was treated at Strong Memorial Hospital in Rochester, NY, a teaching hospital with a very fine cancer center. They suggested a national clinical trial . After a lot of FAST study, I agreed to take part in the trial.
Treatment was similar to yours but a little different-
R-CHOP-- 1 day for six hours or so, repeated once every three weeks for 4 cycles. So about 3 months. No radiation.

For me, the chemo was not much of a problem.You just sit there in a nice lounge chair, doesn't hurt...Bring a book and some munchies, I-Pod, etc.. :&gt
I had no nausea during the 3 months.. well once the 4th day but 1 pill and it was gone..they will give you great pills for that. Lost my hair, now have it back. In fact it changed, more curly, and looks better now. :&gt I would get tired on certain days but could work 50 % or so.. Went to baseball games, swimming, etc..
I have been cancer free since October 2012 and am confident.

Oh, one bad thing. You will probably get what they call chemo mouth. Everything tastes like shit.. so here's your chance to eat some junk food, not so healthy but, what the heck..

OK, now that you know there is hope, more than hope, actually.would be more than happy to put you in touch with very good support groups.

Hang tough. Things will get better....




Recommendations

0 members have recommended this reply (displayed in chronological order):

Hang in there. Locate a support group and attend a couple of meetings. I didn't sinkingfeeling Feb 2014 #1
Do you have a nurse navigator? Ruby the Liberal Feb 2014 #2
Thank you KaryninMiami Feb 2014 #5
I also had a person called a patient advocate/coordinator who mapped out Nay Feb 2014 #7
Mine was through the cancer center at the hospital Ruby the Liberal Feb 2014 #8
Hi Karynin, pangaia Feb 2014 #3
Thanks for your advice! KaryninMiami Feb 2014 #4
You are very welcome. pangaia Feb 2014 #6
I have to second pangaia Ruby the Liberal Feb 2014 #9
I will only echo that the LLS group has been a wonderful source of support ... slipslidingaway Feb 2014 #11
Thanks so much-greatly appreciate your support! KaryninMiami Feb 2014 #13
We all need to support one another ... slipslidingaway Feb 2014 #15
I don't have any tips, just suport. 2theleft Feb 2014 #10
Thanks so very much for your lovely words and support KaryninMiami Feb 2014 #12
Quick update from Lymphoma -Limboland KaryninMiami Feb 2014 #14
Better to make sure of the diagnosis ... slipslidingaway Feb 2014 #16
A vanishing fluke ! KaryninMiami Feb 2014 #19
Reading your update, you have some tough times ahead ... slipslidingaway Feb 2014 #24
I'll take this as a good sign Ruby the Liberal Feb 2014 #17
I sure hope so KaryninMiami Feb 2014 #18
Verdict is in- original diagnosis was correct. Chemo Starts Monday. KaryninMiami Feb 2014 #20
Hi there karynin.. pangaia Feb 2014 #21
Thanks for making me smile KaryninMiami Feb 2014 #22
Well I just realized I should call you Karyn.. DUH!!!! pangaia Feb 2014 #23
First round of chemo done KaryninMiami Feb 2014 #25
Great to hear the first session went well. pangaia Feb 2014 #26
New adventure every day KaryninMiami Feb 2014 #27
Have you considered a hair "halo" that can be worn under hats? deurbano Mar 2014 #28
Thanks very much- will look into it. KaryninMiami Mar 2014 #30
Hi Karyn, pangaia Mar 2014 #29
Symptoms subsided thank goodness KaryninMiami Mar 2014 #31
Hi Karyn, pangaia Mar 2014 #32
1 more to go in this round - however KaryninMiami Mar 2014 #33
Hair and blood cells pangaia Mar 2014 #34
Halfway thru chemo - yay! KaryninMiami Apr 2014 #35
Keeping you in thoughts! Ruby the Liberal Apr 2014 #36
Keeping you in my thoughts and prayers maddezmom Apr 2014 #37
Just checking in... 2theleft May 2014 #38
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