Cancer Support
In reply to the discussion: Diagnosis-rare form of non Hodgkin's lymphoma [View all]pangaia
(24,324 posts)I don't know exactly what type of lymphoma you have. There are many, but non-Hodgkins lymphoma, thanks to its being a very aggressive form of blood cancer, means that with good treatment it can promise very good outcomes.
In July 2012 I was diagnosed with Stage 2 diffuse large b-cell lymphoma-- a type of non-Hodgkins lymphoma. . Including a tumor on/near my spinal cord.
I was treated at Strong Memorial Hospital in Rochester, NY, a teaching hospital with a very fine cancer center. They suggested a national clinical trial . After a lot of FAST study, I agreed to take part in the trial.
Treatment was similar to yours but a little different-
R-CHOP-- 1 day for six hours or so, repeated once every three weeks for 4 cycles. So about 3 months. No radiation.
For me, the chemo was not much of a problem.You just sit there in a nice lounge chair, doesn't hurt...Bring a book and some munchies, I-Pod, etc.. :>
I had no nausea during the 3 months.. well once the 4th day but 1 pill and it was gone..they will give you great pills for that. Lost my hair, now have it back. In fact it changed, more curly, and looks better now. :> I would get tired on certain days but could work 50 % or so.. Went to baseball games, swimming, etc..
I have been cancer free since October 2012 and am confident.
Oh, one bad thing. You will probably get what they call chemo mouth. Everything tastes like shit.. so here's your chance to eat some junk food, not so healthy but, what the heck..
OK, now that you know there is hope, more than hope, actually.would be more than happy to put you in touch with very good support groups.
Hang tough. Things will get better....