General Discussion

I was 225 lbs at dx, now 160, a loss of 65 lbs. I eat 2,500 to 3,500+ calories a day, to no avail. It’s a rare cancer with serious and extraordinally expensive treatments.In the past it was considered terminal, but with advancing treatments it’s gaining a rep as manageable with even a number of lucky patients evolving into a state of functional cure.

Unfortunately I need the treatments to live. Given my disappearing body, there’s just less of me around to do the living.

And getting back to BMPM: that’s a lot of weight to loose. If you’re not now, you should self-advocate for your cure — or at least for meds that treat diseases and patience QoL. Best of luck to you getting the care you need.

I wish peace, happiness, and health for everyone. I really do.