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Dark n Stormy Knight

(10,046 posts)
Tue Jan 19, 2021, 04:35 PM Jan 2021

Questions on Compassionate Friends & Hospice grief counseling

Last edited Tue Jan 19, 2021, 06:49 PM - Edit history (1)

Does anyone have experience with or direct knowledge of the Compassionate Friends group for bereaved parents?

Not sure she would use it, but I'm wondering whether to recommend it to my mother. (As I've posted about before) my brother died tragically in an accident the day after Christmas, just two months after my father died of pancreatic cancer.

Also, DUer SheltieLover mentioned that Hospice organizations offer grief counseling free if charge. Two questions:

I know hospice s a business, so I can't imagine they could offer free support to just anyone. So, would I, say, need to use the Hospice organization that provided my Dad's care? (That one isn't near me, though I assume it wouldn't be in person during pandemic.)

Would they be appropriate for someone not receptive to religion-based counseling?

I'd appreciate help with any of these questions. 💜

On edit: I should say that ages ago when I was in college I did house-cleaning for a family who had lost their 5yo daughter in a fire caused by a toy. Tragic. That was where I first heard about Compassionate Friends.

At least, I think so. I misremembered that this woman had started the group, but my recent research told me that was wrong. So, I had to question my memory that it was instrumental in helping that family through their grief. Also, even if true, I'm curious if the group has changed, for better or for worse.

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Questions on Compassionate Friends & Hospice grief counseling (Original Post) Dark n Stormy Knight Jan 2021 OP
This message was self-deleted by its author Chin music Jan 2021 #1
Thank you. Dark n Stormy Knight Jan 2021 #9
This message was self-deleted by its author Chin music Jan 2021 #12
Dark n Stormy Knight...re: groups to help with grieving... Upthevibe Jan 2021 #2
So sorry to hear of your loss, Up SheltieLover Jan 2021 #4
Thank you, Up. I'll look for that later on. Dark n Stormy Knight Jan 2021 #5
Therapists, generally, are respectful of spiritual preferences SheltieLover Jan 2021 #3
Hey, Sheltie. Thanks for all the info & suggestions you've shared. Dark n Stormy Knight Jan 2021 #7
Yw, Dark! SheltieLover Jan 2021 #10
Funny you should mention the gratitude journal. Dark n Stormy Knight Jan 2021 #13
Yaaaaay! SheltieLover Jan 2021 #14
Well, this is what happens when the insomnia means not just Dark n Stormy Knight Jan 2021 #22
Compassionate Friends website has stories from other bereaved parents Kittycow Jan 2021 #6
Thanks for sharing that, Kitty. Dark n Stormy Knight Jan 2021 #8
It's damn rough, that's for sure. Kittycow Jan 2021 #15
So sorry to hear of your loss, Kitty! SheltieLover Jan 2021 #11
You're welcome :) Kittycow Jan 2021 #16
I know exactly what you mean from 1st hand experience SheltieLover Jan 2021 #17
... Kittycow Jan 2021 #18
... SheltieLover Jan 2021 #19
You guys are the best Kittycow Jan 2021 #20
What you said, Kitty! SheltieLover Jan 2021 #21

Response to Dark n Stormy Knight (Original post)

Response to Dark n Stormy Knight (Reply #9)

Upthevibe

(9,249 posts)
2. Dark n Stormy Knight...re: groups to help with grieving...
Tue Jan 19, 2021, 04:46 PM
Jan 2021

My best friend and her wife lost their 17 y.o. son to suicide on January 2 of this year. I posted in the lounge to see if there were resources that any DU'ers had. I'll look for my thread and post it when I find it. I was able to connect with a wonderful lady who I had a very comforting conversation with. I'm still looking at options and I have found some resources. I'm not feeling well right now (as I've been grieving very deeply as this young man was like a nephew to me who I loved so very much). When I wake up from my nap, I post some resources..

Dark n Stormy Knight

(10,046 posts)
5. Thank you, Up. I'll look for that later on.
Tue Jan 19, 2021, 05:01 PM
Jan 2021

And I'm so sorry for your loss. What a tragedy.

I honestly can't imagine anything will help with my grief. And when I told my mom about Hospice grief counseling, she was dismissive, saying she already knew about that, and anyway was getting too much advice on the subject. I took that to mean, in part, that she feels nothing will be helpful.

But we can't just give up.

I think posting this is partly an attempt to pressure myself to follow through on seeking professional help.

SheltieLover

(60,250 posts)
3. Therapists, generally, are respectful of spiritual preferences
Tue Jan 19, 2021, 04:53 PM
Jan 2021

Unless the person is a trump humper.

That aspect should be set forth in a document called "Informed Consent," which should be provided & reviewed with you before therapy begins.

That said, sorry, no knowledge of Compassionate Friends group.

Hospice orgs make tons of $ on palliative & hospice medical care & social work services. To the best of my knowledge, they do not charge for bereavement therapy. It is a courtesy to bereaved loved ones.

I would contact your dad's hospice & inquire about bereavement counseling. If not in the same state, they might be able to refer you to a hospice in your state. (Most mental health professionals do not have inter state reciprocity & must be licensed in the state they are practicing in as well as the state any client is physically in.)

I hope that helps.

Please let me know if you have other questions or just want to chat.

Dark n Stormy Knight

(10,046 posts)
7. Hey, Sheltie. Thanks for all the info & suggestions you've shared.
Tue Jan 19, 2021, 05:38 PM
Jan 2021

I'm not ignoring any of it. But, between bouts of utter despair, I've been playing the distraction game, alternately working on various diverting projects, listening to non-challenging audiobooks, and watching silly, ancient movies.

Insomnia is worse than ever, I'm eating junk, & getting no exercise. The projects I'm doing are all (sitting) at my computer, organizing photos and other files. I'm in physical as well as emotional pain. I can't accomplish anything that requires any real brain power or stressful decisions.

But, if I can manage to be awake tomorrow when they'll likely be open, I'll try to call hospice.

One little action a day seems to be the most I can expect to accomplish.

I should mention that I'm fortunate to have a lovely, supportive husband here with me. (Well, at the moment he's at the grocery store & I'm practically panicking that he won't make it back. Ugh, I'm a mess.)

SheltieLover

(60,250 posts)
10. Yw, Dark!
Tue Jan 19, 2021, 05:59 PM
Jan 2021

So sorry to hear you are struggling.

These are really difficult times for sure!

Imho, everyone in our country is suffering with dump-related PTSD.

Have you ever started a gratitude journal? Each night, just before bed, list 3 things you are grateful for. Then re-read list, again, just before bed.

The bedtime component is important because as we are falling asleep, our brains are reviewing information & enciding memories into storage.

This is a great way to jump-start a positive energy flow!

I'm glad to hear you have started projects, even if you are flitting between them like a butterfly.

Have you tried guided
visualization meditations? I'm sure there are some good ones online for free.

Btw, items on gratitude journal list should be numbered - just for visual impact. And items you are grateful for can be anything! Sunshine, a new pair of shoelaces, whatever.

I'm glad your hubby is so supportive! A strong social support network is very important & a dynamic many of us are lacking, especially during this pandemic!

Dark n Stormy Knight

(10,046 posts)
13. Funny you should mention the gratitude journal.
Tue Jan 19, 2021, 06:38 PM
Jan 2021

I know that writing things down is beneficial to me in various ways. Even the act of physically putting pen to paper is helpful, though writing things digitally is good, too.

For the past few years, I have left my dated journals almost completely empty. Another decline in self care that's part of this vicious circle I've been caught in, where not doing something adds to my overall decline in ability to do everything.

I have two dated journals for this year. One meant to help me plan my days and one to record them. I've known about the benefits of gratitude tracking for years and have intended to incorporate it. (Thanks for the reminder & the specifics!)

Last night I sat with my husband, who actually does write, at least briefly, the key happenings of each day and my Google Maps Timeline, and filled in this year's journal, to date.

Tonight (OK, I've been getting to sleep between 7am and 11am lately, but we'll call that "tonight&quot ) before sleep, I will negotiate with my OCD as to which journal, where on the page, what color ink, etc, and begin the gratitude exercises. This is something I believe I can do, so thank you for that suggestion!

And, it is so true that everyone is struggling, thanks in part to having Pissolini in power. The poorly managed pandemic has definitely made everything worse.

Social support network? My husband and I have barely gone anywhere or seen anyone. And, we're musicians and have always had at least one gig a month for years and years (small time local affairs, bars, festivals, private parties, etc.) and that has evaporated. Neither of us has picked up an instrument since March! Something we haven't even realized we're grieving. Hopefully, that's not a permanent loss.

Well, obviously I miss talking to people! if you've read this far, you're a mensch! (Not the first evidence.)


SheltieLover

(60,250 posts)
14. Yaaaaay!
Tue Jan 19, 2021, 06:55 PM
Jan 2021

I'm so glad you felt resonance with writing!!!

Have you ever read Dr. James Pennebaker's work on journaling?

There is a valuable physical process thatt occurs when we put pen to paper which is not realized on a keyboard! Not to discourage you from writing on computer. I apologize, I've forgotten which part of brain benefits. (Blush)

Cool you are both musicians! What do you play? Could you do zoom performances?

Could you jam together in your home?

Not much of a social network here, either. Tbh, covid isolation is only slightly different than the norm for me. I live in a burb of Memphis, where violent crime is exceptionally high.

Smart people take an extra person - even to the grocery store! - just to babysit car from vandalism. I'm neither paranoid nor delusional. Just a fact of life here, sadly. (I had no idea when I moved here!)

This is just not normal in any sense... but here we are.

Regarding your negotiations with ocd... what would happen if you set journals / paper & pens on a table, closed your eyes, asked hubby to mix them up & you chose by feel, spontaneously, fully committed to write with & on what you chose by feel? Maybe a way to help you work through that issue?

Hugs to you, Dark!

Dark n Stormy Knight

(10,046 posts)
22. Well, this is what happens when the insomnia means not just
Wed Jan 20, 2021, 04:13 PM
Jan 2021

inadequate, ill-timed sleep, but no sleep at all. I replied at length (natch) to this few hours ago. But it seems, instead of posting it, I ghosted it.



And now I'm shocked it's so late and worried about what happened in my husband's appt with the urologist and wondering why he isn't home yet. So, I'm going to get back to you later, hopefully in a better frame of mind.



It doesn't hurt though, that we finally have a new, non-swamp-dwelling POTUS!




Kittycow

(2,396 posts)
6. Compassionate Friends website has stories from other bereaved parents
Tue Jan 19, 2021, 05:10 PM
Jan 2021

that I found comforting. I also went to a licensed psychologist that my Blue Cross Blue Shield Medi-gap insurance covered.

She gave me tools to help manage my grief, esp in the early stages when I wore my grief like a second skin.

Mainly I went to be able to tell someone my deepest thoughts that I couldn't tell my family. I'm really glad I went.

Dark n Stormy Knight

(10,046 posts)
8. Thanks for sharing that, Kitty.
Tue Jan 19, 2021, 05:53 PM
Jan 2021

You have my sympathy ,and empathy, for your loss & the painful grief. I'm happy for you and encouraged to hear you were able to find support that was helpful.

Kittycow

(2,396 posts)
15. It's damn rough, that's for sure.
Tue Jan 19, 2021, 11:13 PM
Jan 2021

Years two and three were the worst for me because the cocooning shock of losing my only child was wearing off. I can't remember a lot of it and sometimes have to ask my husband what happened here and there

Keeping a journal per se was too horrifying for me but I made an art journal of sorts. That helped. Lately I started an altered book when I realized that I had still buried a lot of stuff as I approached year ten.

I'm really sorry you are going through your loss and grief; it's so very hard.

SheltieLover

(60,250 posts)
11. So sorry to hear of your loss, Kitty!
Tue Jan 19, 2021, 06:01 PM
Jan 2021

I am glad you were able to find relief from your pain.

Healing vibes on the way to you. 💗💗💗

Ty for info on Compassionate Friends!

Kittycow

(2,396 posts)
16. You're welcome :)
Tue Jan 19, 2021, 11:22 PM
Jan 2021

It's a cliche of the grief world, but for me, it did get easier. It took til year five, since child loss is so traumatic, and by the ninth (just past) Christmas, I actually was really happy with my Christmas tree and decorating with all my vintage decorations.

I always thought that I would be wise about grief by now but usually I can only blurt out what happened to me.

Thanks for the kind words.

Kittycow

(2,396 posts)
20. You guys are the best
Tue Jan 19, 2021, 11:33 PM
Jan 2021


We'll have an occasion of joy in a few hours and our burdens will be lightened!

SheltieLover

(60,250 posts)
21. What you said, Kitty!
Tue Jan 19, 2021, 11:36 PM
Jan 2021


I'm very much looking forward to investigations, hearings, trials & max sentences, starting with dump!
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