Chronic Health Conditions Discussion and Support

Alan_Silverman

(24 posts) Mon Nov 8, 2021, 03:28 PM Nov 2021

Fibromyalgia FM/a Test Scandal

Selling Certainty

This is a long well researched article on fibromyalgia and Dr. Bruce Gillis' FM/a test advertised on SiriusXM. Dr. Gillis claimed to the associated with the Faustman Lab at Mass. General Hospital. I called the lab and asked about the test and was told that Dr. Gillis was not associated with the lab. I sent this information to a reporter I knew and that eventually became this article in STAT magazine. At the end in the comment section I tell how I became involved.

I have three autoimmune diseases, fibromyalgia, crohn's and restless leg syndrome. They are mostly under control.

Good luck and best regards,

Alan

4 replies

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Highlight:

Fibromyalgia FM/a Test Scandal (Original Post) Alan_Silverman Nov 2021 OP

Nice work, Alan Wicked Blue Nov 2021 #1

thanks Alan_Silverman Nov 2021 #3

Snake oil salesmen everywhere. Duppers Nov 2021 #2

Bless you Alan_Silverman Nov 2021 #4

Wicked Blue

(6,776 posts)

1. Nice work, Alan

Reply to Alan_Silverman (Original post)

Mon Nov 8, 2021, 04:20 PM

Nov 2021

Sorry to hear that you have fibro and two other autoimmune diseases.

I've had fibromyalgia for many years. I began taking duloxetine for a different problem and found that it keeps the pain level down, except when there's too much stress. It's not a cure, and doesn't do much for fatigue.

Let's hope someone comes up with a cure before too long.

Alan_Silverman

(24 posts)

3. thanks

Reply to Wicked Blue (Reply #1)

Tue Nov 9, 2021, 09:30 AM

Nov 2021

It can be terrible. I've got most of it in hand lately.
If you know any other fibro sufferers who might sign up for this test (It costs $1000) please let them know.
Good luck,
Al

Duppers

(28,260 posts)

2. Snake oil salesmen everywhere.

Reply to Alan_Silverman (Original post)

Mon Nov 8, 2021, 10:18 PM

Nov 2021

Thnx for posting this.
Wishing you continued good luck.

- CFIDS suffer here

Alan_Silverman

(24 posts)

4. Bless you

Reply to Duppers (Reply #2)

Tue Nov 9, 2021, 09:33 AM

Nov 2021

At times I get very tired and foggy.
If you know any fibromyalgia sufferers who might buy this test (it costs $1000) let them know.
Thanks and good luck,
Alan

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