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Sparkly

(24,384 posts)
Wed Jan 8, 2025, 07:42 PM Wednesday

I told my daughter today.

It's been five days since the dire diagnosis was confirmed, and her not knowing has been weighing on my mind. Her Dad, Stepmom, Stinky and I arranged to meet her, our granddaughter, and her SO at Dad & Stepmom's new house. It was ostensibly to 'see the new house,' but she knew something was wrong.

Her Stepmom served sparkling water, snacks, and then a home-cooked, elaborate lunch I was too anxious to eat. We managed to share cheerful time together! Then she said she wanted to know the reason for this gathering, and I told her, one fact at a time, in as few careful words as necessary.

She did break down, but she almost seemed to be expecting it. The one thing that shocked her was the notion that I might live a year or less. She kept apologizing for having been a "bad daughter," while I apologized for having to deliver this news. I reminded her that we can't change the past, that I love her unconditionally, and that I'm proud that she's survived her own ordeals.

In one breath, "It's not about you," and in the next, "It's about you, now." I didn't say it this way, but actually I don't need her to do anything for me. She can spend all the time she wants with me, of course, but not for my sake. All I want now is for her to thrive, stay healthy, and take care of that miracle baby.

I sent her a text message saying we need to stop apologizing. It's a constant habit, and surely she picked it up from me. (A relic from the days when proper girls were taught to apologize constantly for everything and for nothing. My sisters and I do it all the time, and now I do it with my daughter, habitually. "Sorry!" "No, I'm sorry!" "I told you to stop saying you're sorry!" "Oh yeah - sorry.&quot

I proposed we begin a list of sentences that start with "I'm glad," "I'm grateful," "I love," "I'm happy" etc. that we might both continue to expand. Perhaps it could become a blog at some point? Or if there are other mothers and daughters in this position, maybe sooner rather than later? Just writing thoughts after a difficult afternoon.

Thanks again to you all for letting me share all this here.

15 replies = new reply since forum marked as read
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blm

(113,890 posts)
4. I think you hit the right tone and I admire
Wed Jan 8, 2025, 07:52 PM
Wednesday

your intent to have conversations that begin with affirmative thoughts.

Irish_Dem

(60,612 posts)
3. I am glad you told her and now she knows.
Wed Jan 8, 2025, 07:51 PM
Wednesday

She felt something was up and sometimes it is a relief to get it all out in the open.

I think it went very very well.
Excellent job Sparkly.

And I really like how the whole family came together and you did it together.
What a crucial life lesson for your granddaughter.
And support for her and your daughter.

elleng

(137,209 posts)
5. Happy it's behind you, and the good things that are AHEAD!
Wed Jan 8, 2025, 07:52 PM
Wednesday

Daughter just sent me a photo of grands happy with Hanukkah gifts, SMILING together.

THIS ones for YOU (!!!)



Deuxcents

(20,366 posts)
6. There is so much love in your words and most certainly your love shows for your family
Wed Jan 8, 2025, 08:04 PM
Wednesday

Never had that kind of relationship with my parents and by you letting us in on your journey, I’m feeling the kind of love that is unconditional and precious. I’ll be keeping you close to my heart and pray for the best days ahead. 🌺

MLAA

(18,711 posts)
9. You did so well🩷🩷🩷!
Wed Jan 8, 2025, 09:11 PM
Wednesday

I’m so glad you’re going to spend time with your miracle granddaughter and I’m glad today went as well as it could have. Sending you, Stinky and your family hugs.

FakeNoose

(36,163 posts)
10. You will need the love and support of your daughter as well as the entire family in the coming months
Wed Jan 8, 2025, 09:12 PM
Wednesday

Blessings to you and your daughter, Sparkly! Now you can face the future knowing your loved ones are all with you. You have time to create happy memories for your granddaughter. Create an album of photos for her and write down some of your early happy memories. She will cherish it.

Bluethroughu

(6,138 posts)
11. That was an excellent handling of a serious
Wed Jan 8, 2025, 09:42 PM
Wednesday

Future, full of quality time spent with as much love as possible.

Lots of love and light moving forward for you and your whole family.

babylonsister

(171,719 posts)
12. Brava, Sparkly!!
Wed Jan 8, 2025, 10:11 PM
Wednesday

That's one thing your brain no longer has to hang on to, you cleared the air.

Sounds like you have an amazing family, such a bonus.

Pachamama

(17,059 posts)
13. Thank you for updating and sharing
Wed Jan 8, 2025, 10:34 PM
Wednesday

I am really happy to hear you were able to do it in the way you did and I know that this is a huge relief for you and now you can focus on this precious time and love.

dickthegrouch

(3,673 posts)
14. The single best piece of advice I was given when supporting a patient
Thu Jan 9, 2025, 02:29 PM
Thursday

Was never to treat them as if they were on their last legs.
It’s a difficult balance between seeming to ignore the reality of the prognosis and maintaining a positive and light atmosphere. But continuing to discuss subjects of interest and passion is a great way to start. Taking cues from the patient IF they want to discuss the future is best.
I’ve also told everyone I love that since hearing is said to be the last sense to go, I don’t want to hear wailing and screaming, but expressions of love as I pass.

Meowmee

(6,444 posts)
15. You did a great job 🤗
Sun Jan 12, 2025, 01:27 PM
3 hrs ago

It must’ve been so hard to tell your daughter that.

I remember when my mother died. It was pretty sudden. She had a brain aneurysm and went into a coma. Then she was in the hospital for about two weeks and it was a traumatic, crazy ordeal. We found out later she could’ve been saved if she had been flown to another hospital and had surgery immediately, long story.

I just remember that that day for some reason that I didn’t talk to her and say goodbye to her. So I never got to say anything to her and she was in a coma the whole time before she died.

I still hope the treatments can help you and maybe you can live a lot longer than they think. I hope you have a lot of good times with your daughter and your granddaughter and your husband and your family. 🤗

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