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Cancer Support

alfredo

(60,154 posts) Wed Aug 17, 2016, 09:42 AM Aug 2016

0

Anyone using Pilocarpine for dry mouth?

I think I am starting to see its effect.

What are your experiences with pilocarpine?

6 replies

= new reply since forum marked as read

Highlight:

Anyone using Pilocarpine for dry mouth? (Original Post) alfredo Aug 2016 OP

Do you mean good effects? OKNancy Aug 2016 #1

Did they tell you about the salt/baking soda/water mouthwash? alfredo Aug 2016 #3

yes. I have already made him some salt and baking soda rinse OKNancy Aug 2016 #4

Ok. My mind is a bit muddled today. alfredo Aug 2016 #5

Yes, I've taken it since 2009. Started out on 3 per day, 5mg. Then sinkingfeeling Aug 2016 #2

Yeah, my mouth feels different. alfredo Aug 2016 #6

OKNancy

(41,832 posts)

1. Do you mean good effects?

Reply to alfredo (Original post)

Wed Aug 17, 2016, 09:45 AM

Aug 2016

My husband started his radiation yesterday, so we are stocked up on all the biotene products, but I always want to know more.

alfredo

(60,154 posts)

3. Did they tell you about the salt/baking soda/water mouthwash?

Reply to OKNancy (Reply #1)

Wed Aug 17, 2016, 01:25 PM

Aug 2016

Don't use the biotene until you start having dry mouth.

This pertains to cancer of the tongue/neck. I'm of little help for other types.

OKNancy

(41,832 posts)

4. yes. I have already made him some salt and baking soda rinse

Reply to alfredo (Reply #3)

Wed Aug 17, 2016, 01:28 PM

Aug 2016

Today is only his second radiation. Perhaps you don't recall, but my husband has exactly the same thing you did.
Our first chemo is tomorrow.

alfredo

(60,154 posts)

5. Ok. My mind is a bit muddled today.

Reply to OKNancy (Reply #4)

Wed Aug 17, 2016, 04:55 PM

Aug 2016

Had a touch of nausea last night.

sinkingfeeling

(53,399 posts)

2. Yes, I've taken it since 2009. Started out on 3 per day, 5mg. Then

Reply to alfredo (Original post)

Wed Aug 17, 2016, 10:56 AM

Aug 2016

went to 2 a day and have been on 1 per day for last 2 1 /2 years. I was down to only having 4 pills this week and panicked. Got a new prescription from my dentist just yesterday!

The top of my head gets warm and sweats about 1/2 hour after taking it and my nose runs, but I do think it helps with the dry mouth issue.

alfredo

(60,154 posts)

6. Yeah, my mouth feels different.

Reply to sinkingfeeling (Reply #2)

Wed Aug 17, 2016, 04:58 PM

Aug 2016

That makes me think my salivary glands weren't completely destroyed.
I am taking either one or two, three times a day. I am taking two in the morning, and one miday and night

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